There is a lot of change that happens throughout our lives and a diagnosis of dementia is one of those times where change occurs. When life changes because of a diagnosis, a variety of different emotions such as grief and loss, as well as changes to relationships, life roles, and life perspectives can be experienced.
Changes to cognition, memory and functioning amongst other symptoms may occur and this can impact on the person’s life and well-being in many different ways.
It is possible through the journey of progressive change to live well with dementia. Living well with dementia doesn’t overlook the very real impacts of the disease, rather it considers them and includes them in the full picture of being a person living with dementia and those close to them.
Living well with dementia means finding ways to promote well-being and quality of life for everyone affected by the disease. It acknowledges that positive emotions and experiences in life can still be experienced as you move through the changes occurring.
There are many ways to promote well-being through the journey, and supportive strategies can help through the times of change. When we look back on life we can see how we have grown as a person and adapted to changes we have experienced, this happens progressively as do the changes experienced throughout the journey of dementia.
One of the most common aspects of life that a diagnosis of dementia may impact is relationships, the dynamics of relationships, changes in roles within relationships and sometimes loss of relationships.
There are constructive ways to support new phases in the relationships that are closest to the person who has been diagnosed. Changes also occur in our daily experience, depending on current employment, study and the way a person participates in their life.
Living well with dementia also includes knowing how to navigate the health system and support services, which can be a challenge and has the potential to cause stress. Understanding what assistance is available, planning support, and finding services that best meet your needs can benefit the overall experience of living with dementia positively.
People living with dementia and carers can provide a unique perspective on dementia no one else can provide. Our Dementia Advocates often help us to tell this story and offer advice on how to live well with dementia.
Useful Resources
Around the Home
The best living environment for a person with dementia is one that helps them to be as happy and independent as possible. Familiarity is important as changes in this environment may add to confusion and disorientation. The home environment should help you to know where you are and to find where you want to go.
Many people like to take a walk, go to the shops or exercise the dog. People living with dementia are no different. However, due to the impact of cognitive impairment, a person with dementia may become disorientated to the place they are in, forget the route back to their desired location or decide to head to a location other than was first intended.
For people living with dementia, the freedom, autonomy and choice of taking a walk is an important right that maintains their emotional well-being.
Assistive Technology
Assistive Technology may be used to support the independence of people living with dementia, reduce the risk of dangerous situations occurring and help maintain a sense of well-being.
Assistive Technology for those with dementia ranges from straightforward equipment, such as calendar clocks and touch lamps, to high-tech solutions such as satellite positioning systems to help find someone lost.
Dementia Enabling Environments
An enabling environment will encourage a person with dementia to lead as full and independent a life as possible. There are many simple modifications that anybody can make to their home or to landscaping, as well as architectural design changes.
Complementary Medicine
Complementary medicine can be a helpful addition to any health plan. It can help the body cope with stress and burnout as well as support functioning of all the body systems. Many complementary therapies also help with emotional stress and help to improve levels of overall wellbeing. There are many types of complementary medicine. They can also help with diet and lifestyle.
